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Perinatal Hospice: A Parents Story

From: Miles Eddy
Length: 07:15

Hospice care is something that most people associate with elderly people, or at least terminally ill adults. But what happens when the life that is ending is still in the womb? Janell lives in southern Colorado and learned early in her pregnancy that there was a serious problem with her unborn son. Read the full description.

Intersectperinatalhospicecopyright2005_small Early in Janell’s pregnancy, she learned her unborn son had a fatal heart defect. Specialists told her she had three choices for her baby: A heart transplant, experimental surgery, or hospice care. In this interview, we hear about some of the issues and feelings that went into making a decision. Having her mom be the executive director of the local hospice facility offered an ironic opportunity for support from her family. Janell also had to weigh the affect of trying to save her third child on the two daughters she already has, as well as the pain and suffering her newborn baby would have to endure. Despite the difficult situation, Janell and her family find meaning in her son’s life and death.

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Piece Description

Early in Janell’s pregnancy, she learned her unborn son had a fatal heart defect. Specialists told her she had three choices for her baby: A heart transplant, experimental surgery, or hospice care. In this interview, we hear about some of the issues and feelings that went into making a decision. Having her mom be the executive director of the local hospice facility offered an ironic opportunity for support from her family. Janell also had to weigh the affect of trying to save her third child on the two daughters she already has, as well as the pain and suffering her newborn baby would have to endure. Despite the difficult situation, Janell and her family find meaning in her son’s life and death.

2 Comments Atom Feed


Touching Piece

This is a sad, but touching piece. Miles provides a story on a topic that is rarely known or heard of. Good actualities with the mom. It may have been neat (if possible) to have heard from the father as well.

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Review of Perinatal Hospice: A Parents Story

Miles Eddy gives us an unflinching view into an emotionally complex topic: perinatal hospice, showing one woman's difficult choice surrounding her unborn childs fatal congenital heart defect.

The piece is longer than some features at 7:00 plus minutes, but the adroit pacing, carefully chosen narration, and well-chosen actualities keep the listener engaged.

Any local discussion on hospice, medical ethics, or end of life issues might find this selection great to air. It's a heartbreaker for sure, but certainly illustrates courageous decisions made under trying circumstances. Two Thumbs Up.

Broadcast History

11/9/05 - KRZA 88.7 Alamosa/Taos

This is segment 1 of 4 of the half hour show "Intersect Perinatal Hospice", which as of 11/5/05 has not been aired. However, excerpt aired on KRCC 91.5 FM Colorado Springs, Westernskies news cast on 9/29/05.

Transcript

TRANSCRIPTS:
Perinatal Hospice: A Parents Story
By Miles Eddy
Copyright 2005, Midi Age Productions
(719) 379-0308
Web: www.midiage.com
Email: midiage@fone.net

September 25, 2005

---- BEGIN ----

MILES:
Hospice care is something that most people associate with elderly people, or at least terminally ill adults. But what happens when the life that is ending is still in the womb?

JANELL:
I’m Janell. We’re expecting our third child who is born with a fatal heart defect.

MILES:
Janell lives in southern Colorado, and when I spoke with her in May of 2005 she was nine months pregnant! She had learned many months earlier that there was a serious problem with her unborn son.

JANELL:
We went to Denver and saw a couple of specialists and they did a specialized ultrasound on the baby’s heart and determined he had HLHS, which is Hypoplastic Left Heart Syndrome. It’s wh...
Read the full transcript

Timing and Cues

OPTIONAL HOST LEAD
"There are few subjects that challenge the human experience more than life-and-death issues, especially when parents have to make those decisions for their infants. Independent producer Miles Eddy recently spoke with some parents who got devastating news about their pregnancy."

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