Piece image

Gut Reaction

From: Richard Paul
Length: 58:55

Embed_button
Documentary about Celiac Disease
Playing
Gut Reaction
From
Richard Paul

Csalogo_small There is a disease you've probably never heard of, but chances are you have it or someone you know or love has it and doesn't know. Doctors now believe that 1-in-133 Americans have Celiac Disease (an intestinal disorder where your immune system attacks wheat, barley and rye as if they were a virus), though only 1-in-4,700 gets diagnosed. Celiac is more common than diabetes and hypertension, but because the means to diagnose it are only 2 or 3 years old, the disease is practically unknown in this country - both to sufferers and their doctors. REACTION TO THIS PROGRAM "This is terrific. Multiple storytelling idea fits this topic beautifully." -Michael Skoler, managing director for news, Minnesota Public Radio "I very much like the way you have put the material together -- the rhythm of it and the seamless moving from one person to another. The opening is immediately engaging and, followed by people talking about the fact that they had never known what Celiac Disease was -- intriguing. Certainly makes you want to listen." -Maria Balinska, editor, BBC Radio "This superbly-produced program, graphically depicting the symptoms of Celiac Disease, will enlighten patients who have been either mis-diagnosed or undiagnosed, as well as the medical community." -Bob Holland, Program Manager, Mississippi Public Broadcasting Information on Celiac Disease: Celiac Sprue Association (who underwrote the production of this program) National Institutes of Health site on Celiac Disease National Library of Medicine Type "Celiac Disease" into the search engine Corporate Supporters of this program: Gluten-Free Mall Amy's Kitchen Ancient Harvest Quinoa

Piece Description

There is a disease you've probably never heard of, but chances are you have it or someone you know or love has it and doesn't know. Doctors now believe that 1-in-133 Americans have Celiac Disease (an intestinal disorder where your immune system attacks wheat, barley and rye as if they were a virus), though only 1-in-4,700 gets diagnosed. Celiac is more common than diabetes and hypertension, but because the means to diagnose it are only 2 or 3 years old, the disease is practically unknown in this country - both to sufferers and their doctors. REACTION TO THIS PROGRAM "This is terrific. Multiple storytelling idea fits this topic beautifully." -Michael Skoler, managing director for news, Minnesota Public Radio "I very much like the way you have put the material together -- the rhythm of it and the seamless moving from one person to another. The opening is immediately engaging and, followed by people talking about the fact that they had never known what Celiac Disease was -- intriguing. Certainly makes you want to listen." -Maria Balinska, editor, BBC Radio "This superbly-produced program, graphically depicting the symptoms of Celiac Disease, will enlighten patients who have been either mis-diagnosed or undiagnosed, as well as the medical community." -Bob Holland, Program Manager, Mississippi Public Broadcasting Information on Celiac Disease: Celiac Sprue Association (who underwrote the production of this program) National Institutes of Health site on Celiac Disease National Library of Medicine Type "Celiac Disease" into the search engine Corporate Supporters of this program: Gluten-Free Mall Amy's Kitchen Ancient Harvest Quinoa

6 Comments Atom Feed

Caption: PRX default User image

Review of Gut Reaction

The storytellers in this piece all learned as adults and after years of suffering that their ailment was celiac disease. I was fascinated by this piece as I had been a celiac baby in 1948, survived which wasn't really the expected outcome, and lived without severe limitations as though I did NOT have to worry about celiac anymore. The recent attention given to celiac disease and the health experiences of my two sons led me to take the blood test this piece refers to and I tested very positive for celiac. I found this piece profoundly personal and extremely important given the millions of Americans who have celiac but have no idea that they do.

Caption: PRX default User image

Review of Gut Reaction

I was diagnosed with celiac about 6 months ago so this story really helped as part of my life-long learning related to the disease. This piece offers a realistic but emotional view of what it's like to have a disease that people often don't know they have. The way it takes you though the process of uncertainty and fear about what a person is afflicted with to the clarity after learning that they have it is inspiring. The subjects came from a variety of backgrounds and were at different stages of having celiac, which showed how pervasive the disease dubbed, "great pretender" can be. I would have liked to hear a little more from some different doctors and health officials to give it some more credibility.

User image

Review of Gut Reaction

Wise production idea to tell the Celiac story in the words of those who suffer it. The narrative seamlessly flows from one person to another. The arc takes us from childhood to adulthood, from suffering to understanding, from being ill to managing an illness. This is cutting edge because until recently few with this disease were diagnosed. All of the voices speak of having felt lousy since they could remember, of suffering constant stomachaches, headaches, bowel problems, severe fatigue, depression and a host of other ailments. All tell of undergoing all kinds of tests, endlessly misdiagnosed or told they were hypochondriacs. All share feelings of failure, humiliation, and frustration at not being “normal.” All relate the joy of finally being diagnosed and finding the solution: stay away from wheat. It’s estimated that 1 in 133 people have this disease, but that 2.1 million remain undiagnosed. Air this excellent production. Spread the word.

See all 6 comments >>

Timing and Cues

00:0 - 00:59 Billboard
in: Coming up, stories of a disease
OQ: ... Celiac Disease. Stay tuned.

06:00 - 21:00 Segment A
in: This program is made possible
OQ: Amys.com or (707) 578-7270

21:00 - 22:00 Music bed

22:00 - 41:30 Segment B
in: You're listening to Gut Reaction
OQ: a life without wheat

41:30 - 42:30 Music bed

42:30 - 59:00 Segment C
in: This program is made possible
OQ: On the web at glutenfreemall0

Additional Files

Related Website

http://www.csaceliacs.org/