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The Absolute Worst Thing

From: Viki Merrick
Length: 04:39

1st person essay from Seth Carey about living with ALS.

Sethnbass_small While Seth Carey was suffering from ALS (Lou Gehrig's disease), he wrote an essay about living with the disease using a tedious computer writing program called Dasher. It took us weeks to edit back and forth. To respond to an email it would take him a day...good ole yankee tenacity. His other title for the piece was Fun With ALS. Seth passed away 8-19-05 - RIP

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Piece Description

While Seth Carey was suffering from ALS (Lou Gehrig's disease), he wrote an essay about living with the disease using a tedious computer writing program called Dasher. It took us weeks to edit back and forth. To respond to an email it would take him a day...good ole yankee tenacity. His other title for the piece was Fun With ALS. Seth passed away 8-19-05 - RIP

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Review of The Absolute Worst Thing

May is National ALS Awareness Month, and this is a touching first person essay about living with ALS (otherwise known as Lou Gehrig's Disease). It opens and closes with the computer-generated voice of ALS sufferer Seth Carey, because the disease takes away use of the body and voice. Seth's uncle reads the middle of the essay. Seth imagines the absolute worst thing as being able to think and feel but unable to move, and that's the situation he finds himself in. It's a heart-rending piece that is very well written. The narration by Seth's uncle doesn't work well for me because of the vocal quality, and distracts from the piece, but overall it has a lot of impact in creating a mental picture of this disease.

Broadcast History

Weekend Sunday 9/14/04

Timing and Cues

4:38

Related Website

http://compassionatecareinc.org